Managing Emotional Pain of Chronic Illness and Trauma
Living with any chronic health condition can promote feelings of anger, frustration, fear and depression. It’s normal to have concerns about the future. Will I be able to remain independent? Can I care for myself? What will happen to my family and friends? Will I get worse?
Learning how to be your own self-manager involves learning
about your disease and what you can do to manage it.
Effective management of chronic pain can begin as you understand how it effects the brain and the body and better understand how to manage it:
Charlie Rose Brain Series 2 Episode 11: Pain explores this issue in depth in the following video: http://www.charlierose.com/view/interview/12670
You become a partner with your clinician and other health care providers and obtain advice from a variety of sources. You will have to pick and choose and experiment. What you do about your illness is largely determined by how you think about it. The thoughts you have can greatly determine what happens to you and how you handle your health challenges. See Bob's Story, the physical activity section for ideas about how I have managed my multiple, chronic physical limitations, and injuries.
Many diseases have side effects—beyond just the part of the body that they directly effect. It is common to be called upon to manage pain or fatigue by learning relaxation or emotional management techniques. Other techniques might include changes in nutrition, exercise or medications. See below Living a Healthy Life with Chronic Conditions by Kate Lorig, RN (Editor) et al, Bull Publishing, 2000.
© 2004, adapted with permission, Kaiser Permanente Northwest
Health Education Services, Cultivating Health ™
Everyday Fitness Kit
Resources for Managing the Emotional Pain of Illness
Mindfulness Meditations and CD's and Tapes by Jon Kabat-Zinn Ph D.
Discover many wonderful ideas at: http://www.mindfulnesstapes.com/author.html and Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain and Illness (Delta, 1991) and others.
Celebrate Life—New Attitudes for Living with Chronic Illness
Illness can force you to make some painful and dramatic changes. This book teaches you to grieve your losses and embrace the joys of your new beginning. Take control of your illness instead of letting your illness control you.
Kathleen Lewis, Arthritis Foundation, 1999
Power: Ten Steps to Pain Management and Spiritual Evolution
We seek unlimited peace, love and joy in an uncertain world where suffering
is inevitable. Because we manage our pain poorly, we get into trouble. The
wisdom of the ages, taught by the world's diverse religious traditions, offers a
solution to this dilemma by pointing out the connection between pain management
and the cultivation of spiritual qualities. When we develop a spiritual
practice, we learn how to transform our suffering into spiritual power. Dr.
Shapiro describes a self-help method of ten steps that propel spiritual
evolution. The ten steps teach us how to expand our healing power, improve our
pain management skills, and cultivate spiritual qualities. The central premise
is that life, through a series of painful lessons, teaches us that the peace,
love, and joy we seek in the outer world can and must ultimately be found
within. Dr. Shapiro elaborates twelve spiritual methods derived from the world's
great religions. These methods help us unlock healing and spiritual powers
inherent in the body. Detailed instructions explain how these methods help us
cultivate peace, love, joy, strength, and courage in response to any pain of the
body, mind, or soul. These qualities are the jewels of this life. They are
healers. They help us eliminate or endure any painful condition of body, mind,
or soul. They are more powerful than any barrier or challenge we may face. We
encounter trouble no matter which route we take, but the way offered here is the
path of least resistance, the way through our pain to peace, power, and
strength. As we move forward through the steps, we find ourselves living the
richest possible life, a journey where our spirit is in charge and we are ready
In honor of the wonderful work of Phil, and with Phil's assistance, I (Ann Kasper) am re-releasing a cable access interview I did with him a couple years ago. You can see it at www.advocateforwellness.blip.tv It is called "The Spirit of Healing" and is split into three parts on the web. Here is the description:
Dr. Phil Shapiro and Dr. Frank Coppieters discuss healing from the perspectives of a psychiatrist and a shaman. For the first third, Dr. Shapiro answers questions and talks about his book, Healing Power, Ten Steps to Healing to Pain Management and Spiritual Evolution, for the second third, Dr. Coppieters answers questions and speaks about his book, Handbook for the Evolving Heart and then, each author describes his own personal background and journey to find answers.
Fibromyalgia and Chronic Myofascial Pain: This classic survival manual offers you the first comprehensive patient guide for managing the common but often misdiagnosed conditions of Fibromyalgia and chronic myofascial pain. Its management techniques include targeted bodywork for painful trigger points and strategies to help you cope with the chronic pain, sleep problems, and numbing effects that occur as a result of the disease.
Fibromyalgia and the Mind Body Spirit Connection
Presents a 7-step practical guide to help you manage widespread muscular pain and fatigue— learn how to use the strength of the connection of your mind, body and spirit to overcome your symptoms, improve your sleep, and feel better than ever before.
William B. Salt II, M.D. and Edwin H. Season, M.D., Parkview Publishing, 2000.
How to Manage Fibromyalgia & Chronic Fatigue Syndromes: Fibromyalgia & Chronic Fatigue.pdf Discover an extensive list of excellent resources and support.
Living a Healthy Life with Chronic Conditions
Kate Lorig, RN (Editor)
et al, Bull Publishing, 2000.
self-management guidance to assist you in developing an active lifestyle with
conditions like heart disease, arthritis, cancer, diabetes, asthma, emphysema
and others. ISBN:
Get valuable info on all general diseases and conditions basics.. manage your health with our health advice, articles on different diseases and conditions with their symptoms, causes, and treatment http://www.diseasesatoz.com
Visit Kaiser Permanente's extensive HEALTH ENCYCLOPEDIA: http://members.kaiserpermanente.org/kpweb/healthency/entrypage.do
Exploring Disease States and How to Best Manage Them
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